Patient pathway and experiences
This section provides resources from research that relates to the experiences of people with mesothelioma, and their families, across the patient pathway. This is from early symptoms, through diagnosis and treatment, and after active treatment.
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- Resources to download
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- Ten Top Tips - for communicating a mesothelioma diagnosis
- Consensus statement - outlining a list of eleven research priorities for mesothelioma patient and carer experience research
- Videos
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- - a video about the results of the MINNOW study which aimed to generate understanding of the impact of mesothelioma and develop resources to optimise wellbeing
- - a short animation on gender differences in experiences of mesothelioma to help support professionals
- - a powerful play telling the stories of families affected by mesothelioma
- Reports
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- MINNOW study end of project report - this study aimed to generate understanding of the impact of mesothelioma and develop resources to optimise wellbeing
- Radio Meso final report - Communicating a diagnosis of mesothelioma: Findings and Recommendations from the Radio Meso study
- Publications and articles
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- . European Journal of Oncology Nursing. https://doi.org/10.1016/j.ejon.2024.102572
- . European Journal of Oncology Nursing. https://doi.org/10.1016/j.ejon.2024.102545
- . Cancer Nursing Practice.
- . European Journal of Oncology Nursing, 63, 102281. DOI: 10.1016/j.ejon.2023.102281
- . European Journal of Oncology Nursing. 2022 DOI: 10.1016/j.ejon.2022.102122
- . Illness, Crisis & Loss 2022
- . BMJ Open Respiratory Research, 9(1).k M, Robertson S, Darlison L, Creech L & Tod A (2022)
- . Progress in Palliative Care 2022
- . BMJ Open Respiratory Research 2022;9:e001252. doi: 10.1136/bmjresp-2022-001252
- . European Journal of Oncology Nursing. Vol 52, June 2021. https://doi.org/10.1016/j.ejon.2021.101966
- . European Journal of Oncology Nursing 2022 DOI:https://doi.org/10.1016/j.ejon.2022.102207
- . Cancer Nursing Practice. 2021 doi: 10.7748/cnp.2021.e1773
- . Cancer Nursing Practice. 2020 doi: 10.7748/cnp.2020.e1745
- . BMJ Open Respiratory Research 2019;6:e000413. http://dx.doi.org/10.1136/bmjresp-2019-000413