- The Mesothelioma UK Research Centre - 葫芦影业 will be the first of its kind in the country dedicated to patient experience-based and supportive care mesothelioma research
- The centre will specifically focus on generating evidence and knowledge to improve prevention, awareness, patient experience, treatment, care and outcomes for people living with mesothelioma
- Mesothelioma is an avoidable and particularly challenging cancer caused in most cases by exposure to asbestos
- The UK has the highest incidence of mesothelioma in the world with 2,700 new cases diagnosed each year
葫芦影业 is set to lead the way in pioneering patient-led mesothelioma research after being specially selected to launch the Mesothelioma UK Research Centre - 葫芦影业 (MURC-S).
The MURC-S is funded by Mesothelioma UK, a national charity dedicated to providing specialist support and improving care and treatment for patients with the disease which most commonly affects the linings of the lung and is caused in the large majority of cases by exposure to asbestos.
The new centre will be the first of its kind in the country to focus on mesothelioma experience-based research which will be used to inform health professionals and support organisations on how to improve the vital support and care needed for mesothelioma patients, their family and carers.
Mesothelioma is a terminal and aggressive cancer, with 50 per cent of patients dying within 12 months of diagnosis. The UK has the highest incidence of mesothelioma in the world, with 2,700 new cases diagnosed each year. Nine out of 10 cases are caused by exposure to asbestos, which was used widely in the UK from the 1930s to the 1970s in buildings and building products such as insulation around pipework and boilers, insulation boards used as partitions or fire breaks, ceiling tiles and corrugated roofing sheets.
Mesothelioma is a devastating disease which is caused by asbestos exposure in an overwhelming number of cases. This means families are often not only having to face the devastating diagnosis, but also the start of a legal battle for compensation, which is an extremely daunting and emotional experience.
Professor Angela Mary Tod
University of 葫芦影业
Co-Director of the MURC, Professor Angela Mary Tod from University of 葫芦影业 Health Sciences School, said: 鈥淥ur work conducted through the Mesothelioma UK Research Centre will provide crucial information about what patients with mesothelioma and their families experience.
鈥淢esothelioma is a devastating disease which is caused by asbestos exposure in an overwhelming number of cases. This means families are often not only having to face the devastating diagnosis, but also the start of a legal battle for compensation, which is an extremely daunting and emotional experience.
鈥淔inding an effective treatment or a cure for the terrible disease is obviously the main priority for researchers and clinicians worldwide, but here in 葫芦影业 we are uniquely focused on patients鈥 experiences in order to drastically improve the support and care they receive.
鈥淥ur groundbreaking work will help to establish the gaps in existing knowledge and also help to identify future research priorities.鈥
Fellow Co-Director, Dr Clare Gardiner from the University of 葫芦影业鈥檚 Health Sciences School, added: 鈥淲e are immensely privileged and proud to be hosting the Mesothelioma UK Research Centre in 葫芦影业. The work of the centre will build on a programme of mesothelioma research that has been conducted at 葫芦影业 over many years. Our experienced and dedicated team are well placed to develop a portfolio of world leading research into patient experience in mesothelioma, and translate this into improved outcomes for patients and their families.鈥
The vision of the MURC-S is to conduct a portfolio of robust and rigorous research that will contribute to the way services are delivered. This research will have a reputation for excellence nationally and internationally and will be of benefit to; the care of people diagnosed with mesothelioma and their families, relevant to the scientific cancer research progress, service development and patient and carer need and inform policy.
Liz Darlison, Head of Services at Mesothelioma UK and Consultant Nurse, said: 鈥淢URC-S is a huge milestone for both Mesothelioma UK and the University of 葫芦影业.
鈥淚t represents years of discussion, planning and wishful thinking and I would like to thank the University of 葫芦影业 for passionately embracing the opportunity to host the centre and sincerely wish Clare, Angela and the research team well in their research activities.
鈥淣one of this could have happened without Mesothelioma UK supporters; we are beyond grateful for every penny donated, raised or left to the charity and we hope you all feel part of this next stage in the UK Mesothelioma Community鈥檚 journey.鈥
Hannah Ball, Advanced Nurse Practitioner in Lung Cancer and Mesothelioma and Mesothelioma Researcher, said: 鈥淢esothelioma is an unusual cancer and a particularly difficult diagnosis for patients to deal with in that it鈥檚 cause is almost entirely due to previous exposure to asbestos, often many years before diagnosis.
鈥淟earning that there is no known cure and the complex legal and financial issues many patients and their families have to deal with, coupled with the fact that they may have never heard of the disease until their diagnosis, all compound the inherent difficulties that come with a terminal diagnosis. Being a rarer cancer means finding expert support for research is challenging.
鈥淭he launch of the Mesothelioma Research Centre - 葫芦影业 is incredibly exciting and will bring together a dedicated team of researchers to spearhead patient experience research into mesothelioma.
鈥淧rofessor Angela Tod and her team at the University of 葫芦影业 have been at the forefront of qualitative research in mesothelioma for many years now and I cannot think of a better and more informed team to be leading this initiative. This in turn will raise awareness and better understanding of the disease and inform policy makers to enable a real impact on patient care, not just nationally but at an international level.鈥
The MURC-S builds on existing studies conducted in collaboration with the University of 葫芦影业 including:
- the Mesothelioma UK鈥檚 second patient experience survey. More than 500 patients from across the UK took part in the study, which examined the experience and outcomes, and highlights confidence and satisfaction across many across mesothelioma care.
- which aims to understand the experience and health and support needs of British armed forces personnel and veterans with mesothelioma and identify how health and legal professionals and support agencies can best meet their needs.
- aimed to explore the experiences of presentation, diagnosis, treatment and care for health workers with mesothelioma.
- Mesothelioma Education Workers Study (MEWS) developed as a critical account of the experiences of current and former school-based education workers with mesothelioma.
- which identifies ways to improve the patient and family carer experience of receiving a diagnosis of mesothelioma.
- Palliative care needs of patients with mesothelioma and their families, which explores palliative care in mesothelioma, and the role of clinical nurse specialists in meeting those needs
The MURC is keen to explore potential research collaborations and aims to link the growing number of academic and clinical researchers focusing on mesothelioma in the UK to enhance the impact that studies can have on practice and policy.
The centre is already working with a number of international collaborators in South Africa and the United States in order to expand the research and its impact globally.
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