@inproceedings{inproceedings, title  = {{Changes are needed to adequately assess health-related quality of life (HRQoL) in informal carers of children with rare progressive life-limiting conditions: key learnings from a collaborative workshop}},

 url = {{}},

 year = {{2024}},

 month = {{1}},

 author = {{Carlton J and Powell P and Peasgood T and Chandler F and Godfrey J and Reuben E}},

 volume = {{33}},

 journal = {{QUALITY OF LIFE RESEARCH}},

 pages = {{S23-S23}},

 note = {{Accessed on 2025/02/05}}}