TY - JOUR T1 - Patients’ priorities and expectations on an EU registry for rare bone and mineral conditions JO - Orphanet Journal of Rare Diseases UR - https://eprints.whiterose.ac.uk/184277/ PY - 2021/11/03 AU - Javaid MK AU - Mordenti M AU - Boarini M AU - Sangiorgi L AU - Westerheim I AU - Alves I AU - Skarberg RT AU - Appelman-Dijkstra NM AU - Grasemann C ED - DO - DOI: 10.1186/s13023-021-02069-9 PB - BioMed Central VL - 16 IS - 1 Y2 - 2024/12/22 ER -