Professor Jill Carlton
BMedSci (葫芦影业), MMedSci (葫芦影业), PhD (葫芦影业)
Population Health, School of Medicine and Population Health
Professor of Health Outcomes Research
+44 114 222 0799
Full contact details
Population Health, School of Medicine and Population Health
Regent Court (ScHARR)
30 Regent Street
葫芦影业
S1 4DA
- Profile
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I qualified as an orthoptist and worked clinically in the NHS before taking up a research post at the University of 葫芦影业 in 2005.
My experiences as a health care professional led to an interest in evidence-based research that can make a difference to those living with health conditions. I completed my PhD, funded through an NIHR Fellowship award in 2013.
I was appointed Professor in Health Outcomes Research in 2024, and I lead research in measuring and valuing health and quality of life.
- Research interests
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I lead and undertake research and consultancy projects in the development and evaluation of patient-reported outcome measures (PROMs) and outcomes research.
My research has generated evidence used in Health Technology Assessment (HTA) submissions to NICE that are used to determine the effective use of these technologies in the NHS and has been used internationally to generate evidence for HTA submissions to other international agencies.
My research has improved standards in healthcare and been cited in clinical guidelines nationally and internationally and has led to the initiation and refinement of childhood screening programs in Europe.
My research has generated preference-based measures that are licensed for non-commercial and commercial use via , and via Oxford University Innovations, including mental health-specific (), and Duchenne muscular dystrophy-specific ( and DMD-QoL-8D)
My research interests include:
- Measuring and valuing health and quality of life
- Measuring and valuing health-related quality of life in children, rare conditions, and life-limiting conditions
- Development and evaluation of patient-reported outcomes (PROMs)
- Incorporating lived experience perspectives in research through collaborative engagement on health-related quality of life
- Publications
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Show: Featured publications All publications
Featured publications
Journal articles
- . Quality of Life Research, 32(1), 225-236.
- . Journal of Patient-Reported Outcomes, 6(1).
- . Health and Quality of Life Outcomes, 20(1).
- . Value in Health, 25(4), 482-491.
- . Neurology, 96(19), e2438-e2450.
- . Value in Health, 24(10), 1499-1510.
- . Diabetologia.
- . Economies, 7(1).
- . Health Technol Assess, 12(25), iii-194.
- . The Patient - Patient-Centered Outcomes Research.
Website content
All publications
Journal articles
- . Neurology, 103(2).
- . Orphanet Journal of Rare Diseases, 19.
- . Diabetic Medicine, 41(8).
- . Value in Health.
- . Value in Health, 26(12), S461-S461.
- . Value in Health, 26(12), S361-S361.
- . Ophthalmology Retina, 7(5), 420-430.
- . Quality of Life Research, 32(1), 225-236.
- . Preventive Medicine Reports, 28.
- . Journal of Diabetes and its Complications.
- . British and Irish Orthoptic Journal, 18(1), 27-47.
- . Journal of Patient-Reported Outcomes, 6(1).
- . Health and Quality of Life Outcomes, 20(1).
- . Value in Health, 25(4), 482-491.
- . Value in Health.
- . Value in Health.
- . Diabetic Medicine.
- . BMJ Open Diabetes Research & Care, 9(1).
- . Ophthalmology and Therapy.
- . Neurology, 96(19), e2438-e2450.
- . Value in Health, 24(10), 1499-1510.
- . Public Health, 193, 126-138.
- . BMC Medical Research Methodology, 21.
- . Diabetologia.
- . Quality of Life Research.
- . Eye.
- . Health and Quality of Life Outcomes, 18.
- . Trials, 21(1).
- . Health and Quality of Life Outcomes, 18(1).
- . Diabetic Medicine.
- . Journal of Patient-Reported Outcomes, 4(1).
- . British and Irish Orthoptic Journal, 15(1), 133-141.
- . Value in Health, 22(8), 845-850.
- . Strabismus.
- . Strabismus.
- . Health and Quality of Life Outcomes, 17.
- . BMJ Open, 9.
- . Economies, 7(1).
- . Der Ophthalmologe, 116(12), 1186-1193.
- . Ophthalmologica, 241(2), 61-72.
- . Health and Quality of Life Outcomes, 16.
- . Medical Decision Making, 38(6), 699-707.
- . International Journal of Environmental Research and Public Health, 15(7).
- Cost鈥恊ffectiveness comparison of childhood vision and hearing screening programmes throughout Europe (EUSCREEN Study). Acta Ophthalmologica, 96(12), 3-49.
- . The British journal of psychiatry : the journal of mental science, 212(1), 42-49.
- . Value in Health, 21(1), 69-77.
- . Health and Quality of Life Outcomes, 15.
- . Reproductive Health, 12(1).
- . Journal of Medical Screening, 22(2), 55-64.
- . Strabismus, 22(2), 86-87.
- . BMC Ophthalmol, 13, 74.
- . HEALTH AND QUALITY OF LIFE OUTCOMES, 11.
- . Optom Vis Sci, 90(8), 867-873.
- The BIOJ: Evolution or Revolution?. Br Ir Orthopt J, 10, 66-67.
- The BIOJ: a comparative review. Br I Orthopt J, 10, 3-10.
- . Eye (Basingstoke), 26(10), 1295-1301.
- . Br J Ophthalmol, 95(3), 325-330.
- . Journal of Pediatric Ophthalmology and Strabismus.
- What is vision screening? And more importantly, what is it not?. British and Irish Orthoptic Journal, 8, 71-73.
- . Evidence-Based Ophthalmology, 12(4), 212-213.
- Clinicians鈥 perspectives of health related quality of life (HRQoL) implications of amblyopia: a qualitative study. British and Irish Orthoptic Journal, 8, 18-23.
- Comment on FDA guidance for patient-reported outcome. BMJ, 340, 2921-2921.
- . Appl Health Econ Health Policy, 7(1), 1-9.
- . Value Health(5), 793-799.
- Screening for amblyopia and strabismus in children aged 4-5 years: where do we go from here?. British and Irish Orthoptic Journal, 6, 15-21.
- . Health Technol Assess, 12(25), iii-194.
- . Qual Life Res, 16(3), 533-543.
- . Invest Ophthalmol Vis Sci, 46(11), 4016-4023.
- . Quality of Life Research.
- . Disability and Rehabilitation, 1-2.
- Deriving a Preference-Weighted Measure for People with Hypoglycaemia from the Hypo-RESOLVE-QoL. Value in Health.
- . Health and Quality of Life Outcomes, 22(1).
- . Strabismus, 1-16.
- . Scientific Reports, 13(1).
- UK valuation of EQ-5D-5L, a generic measure of health-related quality of life: A study protocol. Value in Health.
- . The Patient - Patient-Centered Outcomes Research.
- . PLOS ONE, 18(3), e0283148-e0283148.
- . Scientific Reports, 13(1).
- . Scientific Reports, 12(1).
- Producing a preference-based quality of life measure to quantify the impact of hypoglycaemia on people living with diabetes: a mixed-methods research protocol. Diabetic Medicine.
- . Journal of Medical Screening, 096914132211266-096914132211266.
- . Scientific Reports, 12(1).
- Assessing the comparative feasibility, acceptability and equivalence of videoconference interviews and face-to-face interviews using the time trade-off technique. Social Science and Medicine.
- Disease-specific assessment of Vision Impairment in Low Luminance (VILL) in age-related macular degeneration 鈥 a MACUSTAR study report. British Journal of Ophthalmology.
- . British and Irish Orthoptic Journal, 9(0), 81-81.
- Screening for amblyopia: a contentious issue. Journal of Pediatric Ophthalmology and Strabismus.
- What is the best approach to adopt for identifying the domains for a new measure of health, social care and carer-related quality of life to measure quality adjusted life years? Application to the development of the EQ-HWB?. European Journal of Health Economics.
- Measuring What Matters 鈥 Little Evidence Supporting the Content Validity of EQ-5D in People with Duchenne Muscular Dystrophy and Their Caregivers. Medical Decision Making.
- Development of a New Health-Related Quality of Life Measure for People Living with Diabetes Who Experience Hypoglycaemia: The Hypo-RESOLVE QoL.
Chapters
- , Encyclopedia of Quality of Life and Well-Being Research (pp. 30-32). Springer International Publishing
- , Encyclopedia of Quality of Life and Well-Being Research (pp. 1-4). Springer International Publishing
- , Encyclopedia of Quality of Life and Well-Being Research (pp. 20-22). Springer Netherlands
- , Encyclopedia of Quality of Life and Well-Being Research (pp. 1-1). Springer Netherlands
- , Essentials in Ophthalmology (pp. 95-111). Springer Berlin Heidelberg
- In Lorenz B & Brodsky M (Ed.), Pediatric Ophthalmology, Neuro-Ophthalmology, Genetics: Strabismus - New Concepts in Pathophysiology, Diagnosis and Treatment Springer
Conference proceedings papers
- Vision Impairment in Low Luminance Reports and Progression of Intermediate Age-Related Macular Degeneration in the MACUSTAR Study Cohort. INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, Vol. 65(7)
- Who Should Value Health-Related Quality of Life in Children? Results from a Dual Country Survey. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S45-S45)
- Quantifying the impact of symptoms on health-related quality of life in idiopathic multicentric Castleman disease: Protocol for a novel outcome measure. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S174-S175)
- Assessing the psychometric performance of a new condition-specific preference-weighted measure, VILL-UI, and EQ-5D-5L in patients with age-related macular degeneration: A MACUSTAR Study Report. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S213-S213)
- Patient-relevance of visual function decline in intermediate age-related macular degeneration a MACUSTAR study report. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S75-S75)
- Fostering collaborative engagement when valuing healthrelated quality of life. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S216-S216)
- Eliciting preferences of people living with diabetes using the Hypo-RESOLVE-QoL-8D to determine the impact of hypoglycaemia to inform economic evaluation. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S95-S95)
- The Hypo-RESOLVE QoL: a new patient reported outcome (PRO) to quantify the impact of hypoglycaemia on health-related quality of life. DIABETOLOGIA, Vol. 66(SUPPL 1) (pp S427-S427)
- UNDERTAKING STUDIES TO INFORM PUBLIC POLICY: MANAGING DATA COLLECTION TO ENSURE DATA QUALITY IN THE EQ-5D-5L UK VALUATION THROUGH THE USE OF INDEPENDENT QUALITY CONTROL ASSESSMENTS. VALUE IN HEALTH, Vol. 26(12) (pp S361-S361)
- ASSESSMENT OF THE EQ-5D AND DMD-QOL FOR DUCHENNE MUSCULAR DYSTROPHY: A PATIENT AND CAREGIVER STUDY. VALUE IN HEALTH, Vol. 26(12) (pp S461-S461)
- . Abstracts
- PSYCHOMETRIC PROPERTIES OF HYPO-METRICS: A SMARTPHONE APPLICATION TO INVESTIGATE THE DAILY IMPACT OF HYPOGLYCAEMIA. DIABETES TECHNOLOGY & THERAPEUTICS, Vol. 24 (pp A216-A217)
- Proceedings of the Patient Reported Outcome Measures (PROMs) Research Conference, 葫芦影业 2021 16-17 June 2021, Virtual, 葫芦影业, UK Abstracts. QUALITY OF LIFE RESEARCH, Vol. 31(SUPPL 1) (pp 1-1)
- Availability of data for cost-effectiveness comparison of vision screening programmes. INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, Vol. 63(7)
- The Hypo-RESOLVE quality of life (QoL) instrument: A study protocol for the development of a new preference-based measure designed to capture the impact of hypoglycaemia on QoL. QUALITY OF LIFE RESEARCH, Vol. 31 (pp S91-S91)
- Exploring the face and content validity of a new patient-reported outcome measure of the impact of hypoglycaemia on quality of life: Results of the Hypo-RESOLVE QoL cognitive interview study. QUALITY OF LIFE RESEARCH, Vol. 31 (pp S59-S59)
- ACCESSIBILITY AND INCLUSIVITY FOR PEOPLE PARTICIPATING IN HEALTH PREFERENCE RESEARCH: HOW DOES THE MODE OF ADMINISTERING AN INTERVIEW IMPACT ON TIME TRADE-OFF STUDIES?. VALUE IN HEALTH, Vol. 25(12) (pp S322-S323)
- Deriving a preference based measure for age-related macular degeneration from the VILL-33: A MACUSTAR Study Report. QUALITY OF LIFE RESEARCH, Vol. 31 (pp S76-S76)
- . Posters
- Psychometric properties of the Vision Impairment in Low Luminance (VILL) questionnaire in age-related macular degeneration in the MACUSTAR study. INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, Vol. 62(8)
- The use of collaborative patient engagement in the development of a PROM to assess the impact of hypoglycaemia on quality of life as part of the Hypo-RESOLVE project: Patient and researcher perspectives. QUALITY OF LIFE RESEARCH, Vol. 30(SUPPL 1) (pp S29-S29)
- Quality of life is impaired in both physical and mental health domains, in patients with Autoimmune Hepatitis: A systematic review and meta-analysis. JOURNAL OF HEPATOLOGY, Vol. 75 (pp S423-S424)
- Measuring carer quality of life in Duchenne muscular dystrophy: A systematic review of the reliability and validity of self-report instruments using COSMIN. QUALITY OF LIFE RESEARCH, Vol. 30(SUPPL 1) (pp S111-S112)
- "I just literally want, like, one day where it's like, I'm not having to worry about anything": The impact of hypoglycaemia on quality of life in people living with diabetes (a Hypo-RESOLVE study). QUALITY OF LIFE RESEARCH, Vol. 30(SUPPL 1) (pp S35-S36)
- Optimising patient and public involvement in Patient Reported Outcome Measure (PROM) development. QUALITY OF LIFE RESEARCH, Vol. 28 (pp S38-S39)
- How to capture fluctuating health impairments in people with multiple sclerosis: development of an intensive longitudinal assessment of the EQ-5D-5L. QUALITY OF LIFE RESEARCH, Vol. 28 (pp S164-S164)
- EUSCREEN study, stage 1 : data collection on vision and hearing screening programs in 40 European countries and Turkey, Israel, Russia, Malawi, Ruanda, Suth-Africa and India. Investigative Ophthalmology & Visual Science, Vol. 60(9). Vancouver, Canada, 28 April 2019 - 2 May 2019.
- The new health and self-management in diabetes (HASMID-10) measure: assessing psychometric performance in a large longitudinal survey. QUALITY OF LIFE RESEARCH, Vol. 27 (pp S39-S39)
- Extending the QALY: developing and testing the proposed items for a new generic measure - results from qualitative review and face validity with patients, social care users and carers. QUALITY OF LIFE RESEARCH, Vol. 27 (pp S189-S189)
- . Value in Health, Vol. 21 (pp S110-S110)
- . Quality of Life Research (pp 1-10)
- Cost-effectiveness comparison of childhood vision and hearing screening programmes throughout Europe (EUSCREEN Study). ACTA OPHTHALMOLOGICA, Vol. 96 (pp 12-12)
- A critical assessment of service user involvement in designing the ReQoL PROM. QUALITY OF LIFE RESEARCH, Vol. 26(1) (pp 120-121)
- The importance of validation and refinement in PROM development: using the HASMID questionnaire, a measure of self-management in diabetes. QUALITY OF LIFE RESEARCH, Vol. 26(1) (pp 124-124)
- . Health and Quality of Life Outcomes, Vol. 15(S1)
- Changing HbA(1c) units: a hindarance, not a help to patients. DIABETOLOGIA, Vol. 60 (pp S342-S342)
- Start of EUSCREEN Study that compares cost-effectiveness of childhood vision and hearing screening programmes in all European countries and implements these in Romania and Albania. INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, Vol. 58(8) (pp 2361-2361), 7 May 2017 - 11 May 2017.
- . Health and Quality of Life Outcomes, Vol. 14(Suppl 1), 9 June 2016 - 9 June 2016.
- Developing a PROM to evaluate self-management in diabetes (HASMID): giving patients a voice. HEALTH AND QUALITY OF LIFE OUTCOMES, Vol. 14
- First validation of the short recovering quality of life (ReQoL) measure. QUALITY OF LIFE RESEARCH, Vol. 25 (pp 96-96)
- Constructing the short recovering quality of life (ReQoL) measure for use in a mental health population: combining psychometric and qualitative evidence. QUALITY OF LIFE RESEARCH, Vol. 25 (pp 70-70)
- Valuing the impact of self-management on quality of life in diabetes using discrete choice experiments. QUALITY OF LIFE RESEARCH, Vol. 25 (pp 134-134)
- Developing the recovery of quality of life measure (ReQoL): the views of mental health service users on potential items. QUALITY OF LIFE RESEARCH, Vol. 25 (pp 46-47)
- . Value in Health, Vol. 19(3) (pp A190-A190)
- Cost-effectiveness of screening programmes for amblyopia. World Ophthalmological Congress 2010. Berlin, Germany, 5 June 2010 - 9 June 2010.
- Impact of amblyopia on quality of life. World Ophthalmological Congress 2010. Berlin, Germany, 5 June 2010 - 9 June 2010.
- Does vision matter: a systematic review of the relationship between visual acuity and utilities.. Royal Collage of Ophthalmologists Annual Congress. Liverpool, UK, 25 May 2010 - 27 May 2010.
- Challenges encountered in developing PROMs: The experience so far in the creation of a PROM for amblyopia in the paediatric population. Part of Symposium: Going to the PROM? Are patient reported outcome measures (PROMs) a useful tool to measure the impact of nursing interventions?. International Nursing Research Conference. Newcastle, UK, 11 May 2010 - 13 May 2010.
- Development of a paediatric disease-specific measure of health related quality of life in amblyopia. British Isles Paediatric Ophthalmology and Strabismus Association (BIPOSA). Glasgow, UK, 23 September 2009 - 25 September 2009.
- Quality of life issues in amblyopia.. Rotterdam Amblyopia Meeting. University Medical Centre, Rotterdam, Netherlands, 12 February 2009.
- Health state valuation for ARMD visual impairment states using simulation lenses. 6th iHEA World Congress on Health Economics. Copenhagen, Denmark, July 2007.
- Are generic preference-based measures truly generic? The case of visual impairment.. 5th iHEA World Congress on Health Economics. Barcelona, Spain, July 2005.
- The relationship between impairment and generic preference based measures, patient valuations and patient life satisfaction in Age Related Macular Degeneration.. European Conference on Health Economics. London School of Economics, London, 2005.
- A survey of quality of life in patients with age related macular degeneration. Transactions of Xth International Orthoptic Congress. Melbourne, Australia, 14 November 2004 - 17 November 2004.
- Lateral gaze incomitance in distance exotropia: should the neutralising prism be placed over the abducting or adducting eye?. British Isles Strabismological Association (BISA). York, UK, 7 October 2004.
- Health status measurement in Age-Related Macular Disease: new evidence for clinic and economic evaluation. Health Technology Assessment International (HTAi). Krakow, Poland, 30 May 2004 - 2 June 2004.
Reports
- Summary Vision Screening Data: Malawi
- Summary Vision Screening Data: Poland
- Summary Vision Screening Data: Luxembourg
- Summary Vision Screening Data: Israel
- Summary Vision Screening Data: Hungary
- Summary Vision Screening Data: Iceland
- Summary Vision Screening Data: Finland
- Summary Vision Screening Data: Austria
- Summary Vision Screening Data: Sweden
- Summary Vision Screening Data: Switzerland
- Summary Vision Screening Data: Slovenia
- Summary Vision Screening Data: Spain
- Summary Vision Screening Data: Serbia
- Summary Vision Screening Data: Slovakia
- Summary Vision Screening Data: Romania
- Summary Vision Screening Data: Scotland
- Summary Vision Screening Data: Macedonia
- Summary Vision Screening Data: Northern Ireland
- Summary Vision Screening Data: Norway
- Summary Vision Screening Data: Malta
- Summary Vision Screening Data: Moldova
- Summary Vision Screening Data: Netherlands
- Summary Vision Screening Data: Latvia
- Summary Vision Screening Data: Lithuania
- Summary Vision Screening Data: Italy
- Summary Vision Screening Data: Kosovo
- Summary Vision Screening Data: Republic of Ireland
- Summary Vision Screening Data: Germany
- Summary Vision Screening Data: Greece
- Summary Vision Screening Data: France
- Summary Vision Screening Data: Estonia
- Summary Vision Screening Data: Faroe Islands
- Summary Vision Screening Data: Czech Republic
- Summary Vision Screening Data: Denmark
- Summary Vision Screening Data: Croatia
- Summary Vision Screening Data: Cyprus
- Summary Vision Screening Data: Bulgaria
- Summary Vision Screening Data: Bosnia and Herzegovina
- Summary Vision Screening Data: Belgium (Brussels)
- Summary Vision Screening Data: Albania
- Summary Vision Screening Data: England & Wales
- Reviewing the impact of visual acuity on utility values and assessing the appropriateness of the EQ-5D in Diabetic Macular Edema
- Reviewing the impact of visual acuity on utility values and assessing the appropriateness of the EQ-5D in Diabetic Macular Edema. Report to Novartis. April 2010.
- General population survey to obtain values for AMD visual impairment states using lenses.
Website content
- Amblyopia and quality of life: a systematic review. Retrieved from
- Clinicians鈥 perspectives of health related quality of life (HRQoL) implications of amblyopia: a qualitative study. Retrieved from
- Valuing condition specific health states using simulation contact lenses. Retrieved from
Posters
- Health Related Quality of Life Measures (HRQoL) in Orthoptics. British and Irish Orthoptic Society Scientific Conference, Oxford UK.
- Visual impairment states: valuation using simulation lenses. International Society for Quality of Life Research, Toronto, Canada.
- First validation of the Recovering Quality of Life measures: a new PROM for use in mental health.
- Constructing a classification system for a new QALY measure in mental health: recovering quality of life (ReQoL).
Working papers
- Patient reported outcome measures of quality of life in Duchenne muscular dystrophy (DMD): a systematic review of content and structural validity using COSMIN. HEDS Discussion Paper Series.
Datasets
Other
Preprints
- Research group
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I am a member of the and have served as an Associate Editor for the Journal of Patient-Reported Outcomes.
PhD students
- Victoria Gale
- Rosie Bamber
- Teaching interests
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My teaching interests lie in health services research, in particular ethical issues involved in health services research. I teach on three masters programmes:
- MSc Health Economics and Decision Modelling (HAR669 module: Health Research Methods)
- MSc Economics and Health Economics (HAR6240 module: Research Methods in Health). I am joint Module Coordinator for HAR6240.
- MSc International Health Technology Assessment, Pricing and Reimbursement (HAR6118: Utility and Patient-reported Outcomes Data in Health Technology Assessment)
- Professional activities and memberships
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- SCHARR Fellowships and Studentships Officer
- Member of SCHARR Postgraduate Research Committee
- Member of SCHARR Research Committee
- Member of HEDS Research Functional Working Group
- Member of HEDS Communications and Impact Functional Working Group
- Member of HEDS Newsletter Development Group
- Fellowships advisor for NIHR Yorkshire and Humber RDS
- Member of the Editorial Board of the British & Irish Orthoptic Journal
- Member of the British and Irish Orthoptic Society
- Member of the British and Irish Orthoptic Society Vision Screening Special Interest Group
- Member of the British Isles Paediatric Ophthalmology & Strabismus Association
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