Our Research & Publications
In partnership with patients and the public, we conduct a portfolio of robust, patient-centred, policy-relevant research focused on understanding the whole palliative care journey and improving care for the people of ºù«Ӱҵ and beyond.
Our research addresses key current challenges in palliative and end of life care by:
- Conducting collaborative, inter-disciplinary research that is co-produced with patients and members of the public.
- Building new knowledge through a breadth of methodological and subject expertise.
- Using high quality evidence to inform clinical practice and policy in palliative and end of life care nationally and internationally.
- Innovating in public engagement by working alongside local communities to actively involve all stakeholders in palliative and end of life care.
We are involved in a wide range of research projects, collaborating with clinical, academic and policy partners. We work closely with local clinical providers including St Luke's Hospice (Research Lead - Dr Paul Taylor), ºù«Ӱҵ Teaching Hospitals NHS Foundation Trust and the CCG. For a summary of our current research projects and publications see below:
- Recent Publications
-
2024
Wakefield D, Ward T, Edge H, Mayland CR, Gardiner C. Palliative and end-of-life care for patients with pleural mesothelioma: A cohort study. Palliative Medicine. 2024;0(0). doi:
Oliver K, Brown M, Walshe C, Salifu Y. A Meta-Ethnographic Review of Paid Staff and Volunteers Working together in Palliative Care. J Pain Symptom Manage. 2023 Dec;66(6):656-670.e11. . Epub 2023 Aug 12. PMID: 37574093.
Mitchell S, Turner N, Fryer K, Aunger J, Beng J, Couchman E, Leach I, Bayly J, Gardiner C, Evans C. Integration of primary care and palliative care services to improve equality and equity at the end-of-life: Findings from realist stakeholder workshops. Palliative Medicine. 2024;0(0).
Mitchell, S., Turner, N., Fryer, K. Beng J, Ogden ME, Watson M, Gardiner C, Bayly J, Sleeman KE, Evans CJ. A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research. Res Involv Engagem 10, 19 (2024).
2023
Webb, E.J.D., Meads, D. and Gardiner, C. (2023) . Oxford Open Economics, 2. odad085. pp. 1-14. ISSN 2752-5074
Wilson F, Wardani E, Ryan T, Gardiner C, Talpur A (2023) Barriers and mechanisms to the development of palliative care in Aceh, Indonesia, Progress in Palliative Care, DOI:
Hargreaves, S., Gardiner, C., Tod, A. and Darlison, L., 2023. . British Journal of Community Nursing, 28(5), pp.248-252.
2022
Gardiner C, Harrison M, Hargreaves S & Taylor B (2022) Palliative care roles and responsibilities of mesothelioma clinical nurse specialists in the UK, Progress in Palliative Care, DOI:
Hudson P, Gardiner C, Alvariza A, et al. Strategies and checklist for designing and conducting palliative care research with family carers: EAPC international expert elicitation study. Palliative Medicine. 2022;0(0). doi:
Turner N, Wahid A, Oliver P, et al. Role and response of primary healthcare services in community end-of-life care during COVID-19: Qualitative study and recommendations for primary palliative care delivery. Palliative Medicine. 2022;0(0). doi:
Mayland, Catriona; Sunderland , Katy; Cooper, Matthew; Taylor, Paul; et al. Measuring quality of dying, death and end-of-life care for children and young people: a scoping review of available tools. Palliative Medicine 2022; Sep 36(8). 1186-1206
Hodge A, Manson J, McTague L, Kyeremateng S, Taylor P. Creating virtual communities of practice for ambulance paramedics; a qualitative evaluation of the use of Project ECHO in end of life care. British Paramedic Journal 2022. Nov. 7(3). 51-58
Bird J & Wilson F (2022) Do not resuscitate orders in the time of COVID-19: Exploring media representations and implications for public and professional understandings, Progress in Palliative Care, DOI:
Gardiner, C., Harrison, M., Hargreaves, S. & Taylor, B. (2022). Clinical nurse specialist role in providing generalist and specialist palliative care: A qualitative study of mesothelioma clinical nurse specialists. Journal of Advanced Nursing,&²Ô²ú²õ±è;00,&²Ô²ú²õ±è;1–&²Ô²ú²õ±è;10.&²Ô²ú²õ±è;
Taylor P, Stone T, Simpson R, Kyeremateng S, Mason S. BMJ Supportive and Palliative Care 2022; 0. 1-4
Mitchell, S., Barclay, S., Evans, C., & Sleeman, K. (2022). Palliative and end-of-life care in primary care during the COVID-19 pandemic and beyond. Br J Gen Pract, 72(714), 6-7. doi:
Ejegi-Memeh S, Taylor B, Gardiner C. Tod A. Patients' and informal carers' experience of living with mesothelioma: A systematic rapid review and synthesis of the literature. European Journal of Oncology Nursing. 2022
Gardiner C, Taylor B, Goodwin H, Robinson J, Gott M. Employment and family caregiving in palliative care: an international qualitative study. Palliative Medicine 2022. Jun;36(6):986-993..
Harrison M, Darlison L, Gardiner C. Understanding the Experiences of end of Life Care for Patients with Mesothelioma from the Perspective of Bereaved Family Caregivers in the UK: A Qualitative Analysis. Journal of Palliative Care. February 2022.
2021
Ariss SMB, Taylor P, Fitzsimmons D, Kyeremateng S, Mawson S. BMJ Supportive and Palliative Care 2021; 0:1-8
Mitchell, S., Harrison, M., Oliver, P., Gardiner, C., Chapman, H., Khan, D…. Mayland, C. (2021). Service change and innovation in community end-of-life care during the COVID-19 pandemic: qualitative analysis of a nationwide primary care survey. Palliative Medicine. doi:
Mitchell, S., Chapman, H., Fowler, I., & McTague, L. Dying at home during covid-19: a view from primary care. BMJ, n1776. doi:
Mitchell S, Oliver P, Gardiner C, Chapman H, Khan D, Boyd K, Dale J, Barclay S & Mayland C. BJGP Open 2021
Webb EJD, Meads D & Gardiner C . BMC Health Services Research 2021, 21: 421
Mitchell S, Harding S, Samani M, Slowther A-M, Coad J & Dale J. . BMJ Open 2021, 11(1).
Harrison M, Gardiner C, Taylor B, Ejegi-Memeh S & Darlison L. . Palliative Medicine 2021;35(6):1039-1051.
Hanna JR, Rapa E, Dalton L, Hughes R, McGlinchey T, Bennett KM, Donnellan WJ, Mason SR & Mayland CR . Palliative Medicine. 2021;35(5):843-851.
Manson J, Gardiner C, Taylor P, Ghasemi L, Westerdale-Shaw E, Sutton L & Cawley H . BMJ Supportive & Palliative Care 2021
Taylor B, Tod A, Gardiner C, Creech L, Forde F & Darlison L . Cancer Nursing Practice 2021, 20(2). doi: 10.7748/cnp.2021.e1773
Limbu T & Taylor PM Br J of Nurs 2021 30(18), 1084-1089.
Walzl N, Sammy IA, Taylor PM, Smith JE & Lowe DJ . Emergency Medicine Journal 2021
Mayland CR, Hughes R, Lane S, McGlinchey T, Donnellan W, Bennett K, Hanna J, Rapa E, Dalton L, Mason SR. . Palliat Med. 2021 Sep;35(8):1480-1491. .
Hanna J, Rapa E, Dalton L, Hughes R, Quarmby LM, McGlinchey T, Donnellan W, Bennett K, Mayland CR, Mason SR*. . Palliat Med. 2021;35(7):1249-1257..
Haugen DF, Hufthammer KO, Gerlach C, Sigurdardottir K, Hansen MIT, Ting G, Tripododo VA, Goldraij G, Yanneo EG, Leppert W, Wolczczak K, Zambon L, Passarini JN, Saad IAB, Weber M, Ellershaw J, Mayland CR. ERANet-LAC CODE Project Group. Oncologist. 2021 Jul;26(7):e1273-e1284. doi: 10.1002/onco.13837.
2020
Mitchell S, Maynard V, Lyons V, Jones N & Gardiner C. . Palliative Medicine 2020, 34(9):1182-1192
Gardiner C, Robinson J, Connolly M, Hulme C, Kang K, Rowland C, Larkin P, Meads D, Morgan T & Gott M . BMC Palliative Care 2020, 19 (1).
Mitchell S, Slowther A-M, Coad J & Dale J . Archives of Disease in Childhood 2020, 106:570-576.
Mayland CR, Ho QM, Doughty HC, Rogers SN, Peddinti P, Praytush C, Mason SR, Cooper M & Dey P . Palliative Medicine. 2021;35(1):27-44.
Mayland C, Doughty HC, Rogers SN, Gola A, Mason S, Hubbert C, Macareavy D & Jack BA . Journal of Palliative Care. 2021;36(2):121-129.
Mayland C, Harding A, Preston N & Payne S (2020) . Journal of Pain and Symptom Management 60 (2) 33-39
Manson J, Ghasemi L, Westerdale E, Taylor P, Kyeremateng S & McTague L . Nursing Older People 2020, 35(2).
- Current Research Projects
-
Details of our current research projects can be found here.
- Research Expertise
-
We have specialist expertise in a range of methodologies, our main areas of research focus include:
- Evaluating quality of care for the dying
- Inequity and inequality in palliative care; improving palliative care access and provision for under-served groups.
- Financial and economic costs of palliative care, and financial support for patients and their families.
- International palliative care; addressing global challenges to establish palliative care in low and middle income countries
- Palliative care in primary care; identification and management of supportive and palliative care needs in the community.
- Service user involvement and PPI, championing meaningful engagement with service users in palliative care research
- Policy-relevant research to improve service design and patient experiences of care.
Equality, Diversity and Inclusion (EDI)
The Research Group is committed to encouraging Equality, Diversity and Inclusion (EDI) among our workforce, and in the research we conduct. You can read our EDI statement here.